Tag Archives | Chronic Fatigue Syndrome

I am tired (an M.E. update)

I don’t know where to start, so perhaps I shall say this: every single attempt to get the NHS to treat me for my M.E. feels like a battle.

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Left Behind

We were at the back of the hall, both of us, huddled up, our backs against the wall. Her coat smelt faintly of the secret cigarette she’d smoked before she came in.

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On heaven and hospital food

I will be continuing my 1 Peter Fiction series next week, but for today I am over at Preston Yancey’s fine abode, guest posting on a series called ‘an everlasting meal and a moveable feast’. Today I am sharing about a time that is still a little vulnerable for me: the week after I gave […]

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Rod and staff: strange comfort

This is the fourth week of an M.E. relapse, which means I am more isolated than usual, needing to spend even more time in bed, in silence.   I am an extrovert. I find that when I’m with people, I have more thoughts and ideas, more motivation and excitement to write and learn, than when […]

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When God doesn’t heal: post for Prodigal

“I know the story I am supposed to tell. I am suppose to tell the story of my miraculous healing…” Not many people know that I have a story of miraculous healing. I am VERY excited to be telling my story in Prodigal today – both of my miraculous healing and my not being healed. […]

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On M.E. and Silence (M.E. awareness week 2013)

Last week I went on an Internet fast. It was meant to be like a silent retreat so I could focus on writing, away from the many voices on social media. I was looking forward to working on my M.E. book, and being productive.   But last week I found myself slipping into worsening health. […]

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Disconnect to reconnect

People often ask me how I can stand it as an extrovert – being housebound and unable to see friends very much. One answer is that I just have to – so that’s how I stand it. But another answer is ‘the Internet’. I started blogging when my brain energy was just good enough to […]

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Why this government is failing the disabled AND the taxpayer (DLA vs PIP)

I have seen a number of news items recently, including periodicals which should know better, saying something like this:   “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.”   […]

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