What if our hearts still dream big, when we are forced to live small? How much do you sacrifice of yourself to achieve your dream?
Tag Archives | illness
While British politics has been merrily imploding, I’ve been finally well enough to leave the house. Hence: #millionsmissing ME funding protest, fish and chips by the sea, the boy’s baptism, plus NEW HAIR! TV, music, online recommendations
We don’t just need spouses who love well, though we certainly need those. The world needs churches who love—in sickness and in health.
Sometimes the church tells me that I should not be sad, because Jesus is enough. My longings tell me that though Jesus may be enough, I do not always see Jesus clearly, feel him near. Jesus may be enough, but I do not yet have enough Jesus.
The Telegraph article gave the impression that Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) offer the best chance of recovery for M.E. patients. Actually, the study found something quite different – that those in the GET and CBT groups had no greater improvements, long-term, than those in the Pacing group (APT) and those who did nothing at all (Standard Medical Care). In other words, their new follow-up study showed that there is no advantage in Graded Exercise Therapy over other therapies.
Offers of prayer and alternative medicine come with two big assumptions: that I can be changed (which, outside of a miracle, is unlikely to happen) and that I need to be un-disabled to be okay.
For us it was my unexpected neurological illness that turned our love upside down. If love languages were inflexible things, we would have been sunk.
These past few years have shown a flurry of small breakthroughs in ME research, indicating inflammation in the brain, showing perhaps for the first time biochemically the ME patient’s abnormal physiological response to exercise, and a possible autoimmune origin. Finding the cause seems closer than ever – but because the government won’t fund it, we are reliant on people who know how devastating this illness can be in order to take research forward.