All the same, this is a time for celebration: ME is in the news in the UK, and it is due to a study which seems to indicate ‘robust evidence’ that ME is a physical not ‘functional’ illness. I dare not even say it, but it could well be that greatly-elusive biomarker the ME world has been waiting for. This could be a huge breakthrough for the future of research and treatment for ME.
Tag Archives | justice
When you have no voice, you are entirely dependent on other people’s willingness to listen to you.
When you have no voice, every single time you strain your body to whisper, there is a cost. You only speak because you absolutely have to speak.
When you have no voice, it is a very lonely experience. People stop asking your opinion, because they know you can’t answer back.
What about the mother who is struggling with an invisible physical infirmity (eg back problems or injury post-birth) who can lift their baby but not at the same time as dealing with a buggy, AND they have depression, and so asking for help with a buggy would push them over the edge into sobbing, and they would just have to leave the bus rather than be able to move? What makes one disability trump another?
I was dismayed to see that when another friend on Facebook posted a ‘first trip out on the bus with my baby’ status, a friend of hers shared the article with the bus ruling, with the comment ‘don’t worry, now you don’t have to give up your place to a wheelchair user. No one can make you move.’ Certainly the way this is being reported is “now buggy users and wheelchair users have equal rights.”
The people think, of course, that nothing will happen. They think because they are rich, they are safe. They have no idea how quickly things can turn around, how speedily their world can implode.
I am wondering: do the possessions we own turn us into bloated Christians? I am slim in body, but obese in possessions – and I wonder what subtle effect this has on my spiritual life. Every time I look at a catalogue for present ideas for other people (which naturally turns into a list of things you might like for yourself), I feel like I am stuffing after-dinner mints into my face after a very large meal.
My July was happy and busy (though it should be noted that I did next to no writing. It turns out I can either live or write, but not do both at the same time). Meanwhile, the world fell apart (Ukraine, Iraq, Gaza), and the Church of England accepted Women Bishops.
I don’t know where to start, so perhaps I shall say this: every single attempt to get the NHS to treat me for my M.E. feels like a battle.