These past few years have shown a flurry of small breakthroughs in ME research, indicating inflammation in the brain, showing perhaps for the first time biochemically the ME patient’s abnormal physiological response to exercise, and a possible autoimmune origin. Finding the cause seems closer than ever – but because the government won’t fund it, we are reliant on people who know how devastating this illness can be in order to take research forward.
Tag Archives | M.E.
All the same, this is a time for celebration: ME is in the news in the UK, and it is due to a study which seems to indicate ‘robust evidence’ that ME is a physical not ‘functional’ illness. I dare not even say it, but it could well be that greatly-elusive biomarker the ME world has been waiting for. This could be a huge breakthrough for the future of research and treatment for ME.
She is my hero, because, like Job, she endures. We admire those who climb mountains and endure freezing temperatures, and history applauds them. But where are the records and awards for those who climb mountains of pain and isolation, day after day, for decades?
I find it hard to know when it’s ‘resting’ and when it’s ‘resistance’.
I find it hard to know when to know if I’m feeling lethargic because the demons are whispering that I have nothing to share with the world, or if I’m feeing lethargic because my body is whispering that it needs longer to recover.
“After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that were on the first scroll, which Jehoiakim king of Judah burned up.”” Jeremiah 36:27-28 Sometimes I read the […]
The wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So I’m linking up with her, and do take a while to look round her blog– she’s one of the nicest people in the blogosphere. Here’s what I’ve been into in May. (If you want […]
Last week I went on an Internet fast. It was meant to be like a silent retreat so I could focus on writing, away from the many voices on social media. I was looking forward to working on my M.E. book, and being productive. But last week I found myself slipping into worsening health. […]
I have seen a number of news items recently, including periodicals which should know better, saying something like this: “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.” […]