Tag Archives | M.E.

Cocooning

I find it hard to know when it’s ‘resting’ and when it’s ‘resistance’.

I find it hard to know when to know if I’m feeling lethargic because the demons are whispering that I have nothing to share with the world, or if I’m feeing lethargic because my body is whispering that it needs longer to recover.

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On the occasion of my MP coming to visit me

  “After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that were on the first scroll, which Jehoiakim king of Judah burned up.”” Jeremiah 36:27-28   Sometimes I read the […]

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What I’m into (May 2013)

The wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So I’m linking up with her, and do take a while to look round her blog- she’s one of the nicest people in the blogosphere.   Here’s what I’ve been into in May. (If you want […]

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On M.E. and Silence (M.E. awareness week 2013)

Last week I went on an Internet fast. It was meant to be like a silent retreat so I could focus on writing, away from the many voices on social media. I was looking forward to working on my M.E. book, and being productive.   But last week I found myself slipping into worsening health. […]

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Why this government is failing the disabled AND the taxpayer (DLA vs PIP)

I have seen a number of news items recently, including periodicals which should know better, saying something like this:   “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.”   […]

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What I’m into (January 2013)

I keep meaning to do a weekly Bits’n’Blogs post, and never getting round to it. And then I saw that the wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So I’m linking up with her, and do take a while to look round her blog- […]

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Again

“Can you please tell me how to get in touch with my local ME specialist? I know the files were being transferred to a new system last year, but I was meant to see him last March, and haven’t heard anything and…”   I stop before the emotion catches up with me: pause, concentrate on […]

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