Tag Archives | myalgic encephalomyelitis

I’m on Radio 4 on Sunday

I have been interviewed as part of a half-hour program presented by John McCarthy (yes, the John McCarthy who was a journalist in the Lebanon hostage crisis) on being ‘In the world, but not of the world’.

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Dancing with the darkness

I cried because I love blogging, and it’s such a lifeline – and I cried because at the same time a part of my soul leapt and said, ‘yes, I need rest’

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Cocooning

I find it hard to know when it’s ‘resting’ and when it’s ‘resistance’.

I find it hard to know when to know if I’m feeling lethargic because the demons are whispering that I have nothing to share with the world, or if I’m feeing lethargic because my body is whispering that it needs longer to recover.

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Left Behind

We were at the back of the hall, both of us, huddled up, our backs against the wall. Her coat smelt faintly of the secret cigarette she’d smoked before she came in.

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On the occasion of my MP coming to visit me

  “After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that were on the first scroll, which Jehoiakim king of Judah burned up.”” Jeremiah 36:27-28   Sometimes I read the […]

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On heaven and hospital food

I will be continuing my 1 Peter Fiction series next week, but for today I am over at Preston Yancey’s fine abode, guest posting on a series called ‘an everlasting meal and a moveable feast’. Today I am sharing about a time that is still a little vulnerable for me: the week after I gave […]

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