Tag Archives | myalgic encephalomyelitis

Video – Interview for New Wine on Chronic Illness and Faith

My interview for New Wine Conference, where I spoke to 2000 people. In just 12 minutes of video I tell my story, talk about how chronic illness impacts your faith, and what helps to survive when God doesn’t answer your prayers.

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#SevereMEday 2017 – 5 Reasons to Hope

We mark the day 8 August, because it was Sophia Mirza’s birthday, who died after being forcibly institutionalised by psychiatrists who didn’t believe she was ill. Sadly, this still happens today to adults and children in the UK. We need change.

But on this day here are five good things that are encouraging me:

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Premier Christianity – what not to say to those with chronic illness

We’ve all said the wrong thing at some point or another…

I put out a question on Facebook about what churches should and shouldn’t do for people with ME – and got almost 100 responses. Some of the stories made me weep – Christians with ME not finding a safe place in churches because leaders believed they were faking their illness for attention. I wanted to represent those answers, along with the facts of ME, in this article for Premier Christianity – but it was a challenge in 800 words!

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NICE Guidelines – Three Easy Calls to Action

The ME/cfs NICE guidelines urgently need a thorough review. You may be asking, what can I do to help? Here are three ways depending on how much time and energy you have:

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ME / CFS Factsheet to Share – NICE is Not Nice to ME

ME patients in the UK have been waiting for ten years for the NICE Guidelines to be updated to reflect current science, and stop the only recommendations for treatment being Graded Exercise Therapy and Cognitive Behavioural Therapy.

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Through the Shadowlands – Julie Rehmeyer (A Review)

Through the Shadowlands is a fascinating memoir, with a compelling story, nuggets of wisdom, and a thorough survey of the scientific research around ME and mould- based illnesses. It is a science-writer’s personal story of contracting ME – (myalgic encephalomyelitis, labelled as Chronic Fatigue Syndrome in the US), and how she made a good, though not full, recovery via extreme mould avoidance and psychological ‘brain retraining’.

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On Disability – Interview with Off The Page

It’s much easier to draw a correlation in the Bible between good followers of God who have suffered, than good people who haven’t. My interview (30 minutes audio or transcript) on disability and M.E. for Off The Page.

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PACE trial debunked, #millionsmissing, Esther Crawley and FITNET – an ME news round-up

There has been so much ME news over the past few months – the PACE trial scandal, #MillionsMissing protests all over the world, and Esther Crawley’s proposed research splashed all over the papers as a ‘breakthrough’, that I thought I’d do a summary.

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