I have seen a number of news items recently, including periodicals which should know better, saying something like this: “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.” [...]
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“Can you please tell me how to get in touch with my local ME specialist? I know the files were being transferred to a new system last year, but I was meant to see him last March, and haven’t heard anything and…” I stop before the emotion catches up with me: pause, concentrate on [...]
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Posted in living with M.E. on Jan 17th, 2013
I was going to write a (slightly overdue) supercool Blogoversary post. But I can’t do that right now. At some point I shall probably write about my experience this week of being rushed to A and E (Emergency Room) in a cool ambulance while they tried to work out if I was having a [...]
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Posted in living with M.E. on Jan 9th, 2013
Flicktone, on Flickr”> I scroll endlessly between the two options: dark green or dark grey? Which pair of boots will be better? (I really wanted patent black, but they didn’t have it). Grey will do. Grey will be good. It will be better than patent black, really. It will be more wearable. Do I [...]
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Posted in Bible, living with M.E. on Sep 11th, 2012
“…And then a light clicked on for me. I thought of the chains of my disability. I thought of Paul, imprisoned in his house, unable to preach the gospel openly. I thought of his goal to go to the far nations, to preach where the gospel had not gone before. I thought of his love [...]
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I was seventeen, and alone, crying uncontrollably in the corridor. And I went to my French lesson anyway. ******* It was the end of form period and the bell had just rung for the final lesson of the day. “Tanya, could you stay behind for a moment?” my form tutor asked. [...]
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It’s ‘Five minute Friday’ time, joining with Lisa-Jo Baker. She gives us 1 word, we write for 5 minutes flat – no backtracking or editing, throwing caution to the wind. Check out others’ five-minute offerings by clicking on the button below. This is my best five minutes on ‘Risk’. GO I’m playing Russian [...]
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Posted in M.E., M.E. awareness on May 11th, 2012
I wanted to end this week of M.E. Awareness by asking you to do me a favour. Please do one of these three things below to help M.E. sufferers like me. They all involve a key number: 100,000. 1. GIVE £100K is the amount needed to open an M.E. Centre of Excellence in Norwich, [...]
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There are times in life when you hear of suffering so great that it momentarily robs you of your breath. That was my reaction when reading of Jenny Rowbory’s life. While in her first term at university (studying Medicine), she became suddenly and severely ill with M.E. In her own words, this has [...]
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Posted in M.E., M.E. awareness on May 8th, 2012
The importance of awareness This is the first time I have marked the M.E. Awareness Week, despite having been diagnosed with it for 6 years. Before, I always thought, ‘why do people need to be aware of my illness? Isn’t that just whingeing?’ But now I see the importance. We need people to be [...]
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