Tag Archives | myalgic encephalomyelitis

On Disability – Interview with Off The Page

It’s much easier to draw a correlation in the Bible between good followers of God who have suffered, than good people who haven’t. My interview (30 minutes audio or transcript) on disability and M.E. for Off The Page.

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PACE trial debunked, #millionsmissing, Esther Crawley and FITNET – an ME news round-up

There has been so much ME news over the past few months – the PACE trial scandal, #MillionsMissing protests all over the world, and Esther Crawley’s proposed research splashed all over the papers as a ‘breakthrough’, that I thought I’d do a summary.

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Video – Interview – Exeter

The church brought a camera to my house, an hour away from their church, and asked me lots of questions about my experience and theology. They played this 38 minute video interview to 200 people gathered there,

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What I’m Into (Jul Aug 2016 – the late edition)

Last year, I wrote a popular post entitled ‘When Your Holiday is Not Heaven.’ I stand by that, but this year, my holiday was actually pretty darn close to heaven, and here’s some reasons why:

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What I’m Into – May June 2016

While British politics has been merrily imploding, I’ve been finally well enough to leave the house. Hence: #millionsmissing ME funding protest, fish and chips by the sea, the boy’s baptism, plus NEW HAIR! TV, music, online recommendations

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Why I’m Giving Up My Trainers #millionsmissing

I am Tanya Marlow, sick with ME for twenty years, housebound for the last six, one of the millions missing.
Because of ME, I miss playing with my son at the park, singing opera arias properly; I miss the freedom of going round to friends’ houses for meals or coffee, I miss walking hand in hand with my husband; I miss my ministry in church.
I miss running.

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What I’m Into – Mar/Apr 2016

This is a late, double-bill edition of What I’m Into – the Mysterious SuperVirus ME Relapse edition. Which means LOTS of recommendations – including Addie Zierman, Carolyn Custis James, Carolyn Weber, LB Hathaway, Helen Dunmore, Joshua Ferris – plus birthday photos and #FrontdoorSunbathing

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ME is not exercise phobia, it’s a physical illness

“Enter Spectator writer Rod Liddle, who’s baffled by ME patients wanting better treatment than this… With a strange logic, he asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder.

“Meanwhile, people are quietly dying of ME.”

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