Tag Archives | myalgic encephalomyelitis

Dancing with the darkness

I cried because I love blogging, and it’s such a lifeline – and I cried because at the same time a part of my soul leapt and said, ‘yes, I need rest’

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Cocooning

I find it hard to know when it’s ‘resting’ and when it’s ‘resistance’.

I find it hard to know when to know if I’m feeling lethargic because the demons are whispering that I have nothing to share with the world, or if I’m feeing lethargic because my body is whispering that it needs longer to recover.

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On the occasion of my MP coming to visit me

  “After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that were on the first scroll, which Jehoiakim king of Judah burned up.”” Jeremiah 36:27-28   Sometimes I read the […]

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What I’m into (May 2013)

The wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So I’m linking up with her, and do take a while to look round her blog- she’s one of the nicest people in the blogosphere.   Here’s what I’ve been into in May. (If you want […]

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Why this government is failing the disabled AND the taxpayer (DLA vs PIP)

I have seen a number of news items recently, including periodicals which should know better, saying something like this:   “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.”   […]

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Again

“Can you please tell me how to get in touch with my local ME specialist? I know the files were being transferred to a new system last year, but I was meant to see him last March, and haven’t heard anything and…”   I stop before the emotion catches up with me: pause, concentrate on […]

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Not right now

I was going to write a (slightly overdue) supercool Blogoversary post. But I can’t do that right now.   At some point I shall probably write about my experience this week of being rushed to A and E (Emergency Room) in a cool ambulance while they tried to work out if I was having a […]

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Boots

Flicktone, on Flickr”> I scroll endlessly between the two options: dark green or dark grey? Which pair of boots will be better? (I really wanted patent black, but they didn’t have it). Grey will do. Grey will be good. It will be better than patent black, really. It will be more wearable.   Do I […]

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