She is my hero, because, like Job, she endures. We admire those who climb mountains and endure freezing temperatures, and history applauds them. But where are the records and awards for those who climb mountains of pain and isolation, day after day, for decades?
Tag Archives | myalgic encephalomyelitis
My interview for BBC Radio 4 on the topic of being ‘in the world, but not of the world’, presented by John McCarthy
I have been interviewed as part of a half-hour program presented by John McCarthy (yes, the John McCarthy who was a journalist in the Lebanon hostage crisis) on being ‘In the world, but not of the world’.
I cried because I love blogging, and it’s such a lifeline – and I cried because at the same time a part of my soul leapt and said, ‘yes, I need rest’
I find it hard to know when it’s ‘resting’ and when it’s ‘resistance’.
I find it hard to know when to know if I’m feeling lethargic because the demons are whispering that I have nothing to share with the world, or if I’m feeing lethargic because my body is whispering that it needs longer to recover.
I don’t know where to start, so perhaps I shall say this: every single attempt to get the NHS to treat me for my M.E. feels like a battle.
We were at the back of the hall, both of us, huddled up, our backs against the wall. Her coat smelt faintly of the secret cigarette she’d smoked before she came in.
“After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that were on the first scroll, which Jehoiakim king of Judah burned up.”” Jeremiah 36:27-28 Sometimes I read the […]