All the same, this is a time for celebration: ME is in the news in the UK, and it is due to a study which seems to indicate ‘robust evidence’ that ME is a physical not ‘functional’ illness. I dare not even say it, but it could well be that greatly-elusive biomarker the ME world has been waiting for. This could be a huge breakthrough for the future of research and treatment for ME.
When you have no voice, you are entirely dependent on other people’s willingness to listen to you.
When you have no voice, every single time you strain your body to whisper, there is a cost. You only speak because you absolutely have to speak.
When you have no voice, it is a very lonely experience. People stop asking your opinion, because they know you can’t answer back.
I don’t know where to start, so perhaps I shall say this: every single attempt to get the NHS to treat me for my M.E. feels like a battle.
Last week I went on an Internet fast. It was meant to be like a silent retreat so I could focus on writing, away from the many voices on social media. I was looking forward to working on my M.E. book, and being productive. But last week I found myself slipping into worsening health. […]
I wanted to end this week of M.E. Awareness by asking you to do me a favour. Please do one of these three things below to help M.E. sufferers like me. They all involve a key number: 100,000. 1. GIVE £100K is the amount needed to open an M.E. Centre of Excellence in Norwich, UK. […]
There are times in life when you hear of suffering so great that it momentarily robs you of your breath. That was my reaction when reading of Jenny Rowbory’s life. While in her first term at university (studying Medicine), she became suddenly and severely ill with M.E. In her own words, this has been her […]
The importance of awareness This is the first time I have marked the M.E. Awareness Week, despite having been diagnosed with it for 6 years. Before, I always thought, ‘why do people need to be aware of my illness? Isn’t that just whingeing?’ But now I see the importance. We need people to be […]
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Tanya Marlow blogs on the Bible, suffering and the messy edges of life [read more]