The summary and highlights of the historic ME Debate in Westminster Parliament, secured by Carol Monaghan. Plus two interviews by me for TWR and Premier Christianity radio about the debate – why should Christians care about ME?
Tag Archives | myalgic encephalomyelitis
Listen here for the replay of my LIVE interview with radio UCB 2’s Ruth O’Reilly – talking for 35 minutes on Myalgic Encephalomyelitis and why what helps chronic illness sufferers is counter-intuitive to most Christians.
My interview for New Wine Conference, where I spoke to 2000 people. In just 12 minutes of video I tell my story, talk about how chronic illness impacts your faith, and what helps to survive when God doesn’t answer your prayers.
We mark the day 8 August, because it was Sophia Mirza’s birthday, who died after being forcibly institutionalised by psychiatrists who didn’t believe she was ill. Sadly, this still happens today to adults and children in the UK. We need change.
But on this day here are five good things that are encouraging me:
We’ve all said the wrong thing at some point or another…
I put out a question on Facebook about what churches should and shouldn’t do for people with ME – and got almost 100 responses. Some of the stories made me weep – Christians with ME not finding a safe place in churches because leaders believed they were faking their illness for attention. I wanted to represent those answers, along with the facts of ME, in this article for Premier Christianity – but it was a challenge in 800 words!
The ME/cfs NICE guidelines urgently need a thorough review. You may be asking, what can I do to help? Here are three ways depending on how much time and energy you have:
ME patients in the UK have been waiting for ten years for the NICE Guidelines to be updated to reflect current science, and stop the only recommendations for treatment being Graded Exercise Therapy and Cognitive Behavioural Therapy.
Through the Shadowlands is a fascinating memoir, with a compelling story, nuggets of wisdom, and a thorough survey of the scientific research around ME and mould- based illnesses. It is a science-writer’s personal story of contracting ME – (myalgic encephalomyelitis, labelled as Chronic Fatigue Syndrome in the US), and how she made a good, though not full, recovery via extreme mould avoidance and psychological ‘brain retraining’.