I have seen a number of news items recently, including periodicals which should know better, saying something like this: “Disability Living Allowance, the benefit that helps with the extra costs of being disabled, is being replaced by PIP. PIP will have regular face-to-face assessments, rather than DLA which was based on self-assessment questionnaires.” This makes […]
Tag Archives | myalgic encephalomyelitis
Again
“Can you please tell me how to get in touch with my local ME specialist? I know the files were being transferred to a new system last year, but I was meant to see him last March, and haven’t heard anything and…” I stop before the emotion catches up with me: pause, concentrate on my […]
Not right now
I was going to write a (slightly overdue) supercool Blogoversary post. But I can’t do that right now. At some point I shall probably write about my experience this week of being rushed to A and E (Emergency Room) in a cool ambulance while they tried to work out if I was having a […]
Boots
Flicktone, on Flickr”> I scroll endlessly between the two options: dark green or dark grey? Which pair of boots will be better? (I really wanted patent black, but they didn’t have it). Grey will do. Grey will be good. It will be better than patent black, really. It will be more wearable. Do I really […]
Paul, Prison and Paralympics
I watched the Olympics medal ceremony, feeling a little tearful alongside the winners. It is amazing to celebrate with those who have achieved their goal, who have succeeded, who have conquered. But I felt a bit sad as well, as I recalled some of the goals that I had had to leave behind because of […]
The day that changed my life
I was seventeen, and alone, crying uncontrollably in the corridor. And I went to my French lesson anyway. ******* It was the end of form period and the bell had just rung for the final lesson of the day. “Tanya, could you stay behind for a moment?” my form tutor asked. I nodded, surprised. I […]
When risk is risky
It’s ‘Five minute Friday’ time, joining with Lisa-Jo Baker. She gives us 1 word, we write for 5 minutes flat – no backtracking or editing, throwing caution to the wind. Check out others’ five-minute offerings by clicking on the button below. This is my best five minutes on ‘Risk’. GO I’m playing Russian Roulette with […]
100K – M.E. Awareness
I wanted to end this week of M.E. Awareness by asking you to do me a favour. Please do one of these three things below to help M.E. sufferers like me. They all involve a key number: 100,000. 1. GIVE £100K is the amount needed to open an M.E. Centre of Excellence in Norwich, UK. […]
